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Ehlers-Danlos Syndrome (EDS)

Personal stories and helpful health tips from real people living with EDS.
·
531 Pins
 9w
Collection by
The Mighty
Similar ideas popular now
Chronic Illness
Invisible Illness
Health
“I have it in a way that's impacted my medical journey.” Is Fibromyalgia Real, Hypochondriacs, What Is Success, Hypermobility, Ehlers Danlos Syndrome, We Dont Talk, Tight Muscles, Imposter, Medical History
Is Fibromyalgia Real
Hypochondriacs
What Is Success
Hypermobility
Ehlers Danlos Syndrome
We Dont Talk
Tight Muscles
Imposter
Medical History
The Type of Imposter Syndrome We Don't Talk About
“I have it in a way that's impacted my medical journey.”
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"The sex was different, but it was different in a good way." Types Of People, Real People, Chronic Pain, Fibromyalgia, Hip Dislocation, Pelvic Floor Therapy, Me Condition, Premenstrual
Types Of People
Real People
Chronic Pain
Fibromyalgia
Hip Dislocation
Pelvic Floor Therapy
Me Condition
Premenstrual
A Year Without Sex Forced Me to Finally Confront My Pelvic Floor Dysfunction
"The sex was different, but it was different in a good way."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"As an OT who lives with chronic pain, when my patients tell me about their difficult experiences, I get to say something most medical professionals can’t." Chronic Illness, Ehlers Danlos Syndrome Symptoms, Allergy Types, Mast Cell Activation Syndrome, Social Stigma, Increase Heart Rate, Hip Dysplasia
Chronic Illness
Ehlers Danlos Syndrome Symptoms
Allergy Types
Mast Cell Activation Syndrome
Social Stigma
Increase Heart Rate
Hip Dysplasia
Inside the Mind of Someone With Hypermobile EDS at Night
"As an OT who lives with chronic pain, when my patients tell me about their difficult experiences, I get to say something most medical professionals can’t."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"I do my best when I’m fully sensitive to my chronic illness, not when I’m fighting to pretend it doesn’t exist." Take Care Of Me, Take Care Of Yourself, Emergency Room Doctor, Dizzy Spells, Attention Seekers
Take Care Of Me
Take Care Of Yourself
Emergency Room Doctor
Dizzy Spells
Attention Seekers
How I Learned to Care for Myself After Years of Denying My EDS
"I do my best when I’m fully sensitive to my chronic illness, not when I’m fighting to pretend it doesn’t exist."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
7. "There's not a 'one box fits all' approach." Syndrome Ehlers Danlos, Síndrome De Ehlers Danlos, Libido, Troubles Psychiques, Sport Fitness, La La Land
Syndrome Ehlers Danlos
Síndrome De Ehlers Danlos
Libido
Troubles Psychiques
Sport Fitness
La La Land
16 Things I Wish I Knew After My EDS Diagnosis
7. "There's not a 'one box fits all' approach."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"While the confusion between mobility and flexibility may seem harmless at first, it leads to real problems." Ehlers Danlos Society, How To Do Splits, Spectrum Disorder, Body Composition, Physical Therapist
Ehlers Danlos Society
How To Do Splits
Spectrum Disorder
Body Composition
Physical Therapist
The Difference Between Hypermobility and Flexibility — and Why It Matters
"While the confusion between mobility and flexibility may seem harmless at first, it leads to real problems."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"You know you have EDS when you dislocate your fingers pulling up your leggings." Flexible Joint, Flexible Working, Ligaments And Tendons, Everything Is Falling Apart, Finger Pull, Im Falling, Relatable Tweets, Loose Skin
Flexible Joint
Flexible Working
Ligaments And Tendons
Everything Is Falling Apart
Finger Pull
Im Falling
Relatable Tweets
Loose Skin
13 of the Funniest (and Most Relatable) Tweets About Ehlers-Danlos Syndrome
"You know you have EDS when you dislocate your fingers pulling up your leggings."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"There can be a snowball of symptoms that come with instability." Tight Shoulders, Beginner Ab Workout, High Fever, Muscle Strain, Self Massage, Abs Workout For Women, Physical Therapy
Tight Shoulders
Beginner Ab Workout
High Fever
Muscle Strain
Self Massage
Abs Workout For Women
Physical Therapy
2 Types of Pain Ehlers-Danlos Syndrome Causes on a Daily Basis
"There can be a snowball of symptoms that come with instability."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"When someone is living with EDS, their tendons and ligaments are on what I like to call a permanent vacation." Permanent Vacation, Funny Feeling, Keep Fighting, Puzzle Pieces, When Someone, Explained, Health Tips
Permanent Vacation
Funny Feeling
Keep Fighting
Puzzle Pieces
When Someone
Explained
Health Tips
A Visual I Created to Explain Ehlers-Danlos Syndrome
"When someone is living with EDS, their tendons and ligaments are on what I like to call a permanent vacation."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"After a lifetime of hearing exactly the opposite from medical professionals, I almost broke down in tears." Celiac Diagnosis, Hurt By Friends, The Way I Feel, Rare Disease, Invisible Illness, Medical Science, Hearing, Lifetime
Celiac Diagnosis
Hurt By Friends
The Way I Feel
Rare Disease
Invisible Illness
Medical Science
Hearing
Lifetime
When Your Rare Disease Experience Is Finally Recognized and Validated
"After a lifetime of hearing exactly the opposite from medical professionals, I almost broke down in tears."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
See what leading experts and 750 people with Ehlers-Danlos syndrome have to say. Ed Meds, Low Muscle Tone, Feeling Dizzy
Ed Meds
Low Muscle Tone
Feeling Dizzy
What Is EDS: Types, Causes, and Condition Management
See what leading experts and 750 people with Ehlers-Danlos syndrome have to say.
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"I'm forever stretching and cracking my joints." Si Joint, Dreamworks Movies, Brush My Teeth, Brain Fog, I Got Married, Having A Bad Day
Si Joint
Dreamworks Movies
Brush My Teeth
Brain Fog
I Got Married
Having A Bad Day
22 'Habits' of People With Ehlers-Danlos Syndrome
"I'm forever stretching and cracking my joints."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
"What we conceal is not obvious to the rest.” Neurocardiogenic Syncope, Shoulder Surgery, Autonomic Nervous System, Dysautonomia
Neurocardiogenic Syncope
Shoulder Surgery
Autonomic Nervous System
Dysautonomia
25 Pictures That Show What Ehlers-Danlos Syndrome Really Looks Like
"What we conceal is not obvious to the rest.”
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
EDS is a complex illness and can cause many serious physical issues beyond simply "being flexible." Nerve Damage Symptoms, How Much Magnesium, Chemotherapy Drugs, Shoulder Massage, Neuropathic Pain, Magnesium Deficiency, Hand Hygiene, Alcohol
Nerve Damage Symptoms
How Much Magnesium
Chemotherapy Drugs
Shoulder Massage
Neuropathic Pain
Magnesium Deficiency
Hand Hygiene
Alcohol
24 Surprising Symptoms of Ehlers-Danlos Syndrome
EDS is a complex illness and can cause many serious physical issues beyond simply "being flexible."
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)
Do you experience these symptoms? Red Rash On Face, Intracranial Hypertension
Red Rash On Face
Intracranial Hypertension
10 Little-Known Symptoms of Ehlers-Danlos Syndrome — in Photos
Do you experience these symptoms?
The Mighty
The Mighty
Ehlers-Danlos Syndrome (EDS)